DEBRA UK is a national charity supporting people suffering from Epidermolysis Bullosa (EB)

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Spider’s scope of work aimed at positioning DEBRA as lead charity in the space, building relationships with key media, influencers and external stakeholders.

Spider devised a strategy which focused on raising awareness ahead of the conference, generating coverage and driving attendance.

DEBRA, a national charity supporting people suffering from Epidermolysis Bullosa (EB) appointed Spider to launch its first global congress.

This ground-breaking, first ever, worldwide gathering for the ‘Butterfly Children’ as suffers are known – will bring together all the global know how on EB research, clinical management, and the EB Community.

By pooling this understanding across the key stakeholders will give guidance to professionals engaged in the specialised field and help in the development of strategies for research, regulatory issues, funding, and roll-out in healthcare communities.

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This subject is emotionally difficult, and the challenge is tough

DEBRA UK – a Spider client for 1 year and counting

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